I was born in Montebelluna (TV), on 1 July 1940, during a short vacation of mine, from Tripoli, Libya, where he had been born a year before my brother Marco (now famous physical - mathematical, and died last year without being able to fully collect the rewards that are up would be] and also in the company of her sister Estella, two years older than me.
It was now in full and my war, after being returned to Africa, had to leave for Italy in 1942, settling in Rome, where he was born the youngest: Ursula and where my brother was stricken with polio. Later, during the war, my father, first and Luino Desenzano, then at the end of the Republic of Salo, in Turin at the home of his paternal grandparents.
After the war, my father was purged and all lived in a tiny house in a village in Piedmont until 1947/48, when my father was reinstated and appointed Head of Office (appointment that made us laugh a lot, then) in La Spezia, where he lived in his maternal grandmother who welcomed her home, as well as the second daughter already married with a baby. our family.
In '50 we followed Dad again in his new position, was one of the leaders of the trustee in Italian Somalia: AFIS, commissioned by the British for the Somalis to self-educate. (Apparently 10 years in office were too few, given the current situation!). We were four wonderful years, and lived the first 3 in the interior, near the border of Ethiopia and those who lived in Mogadishu, where my brother and I attended the High School, the school ended Orsola medium and attended two years of high school, while more had returned from Italy where she had gone to meet the high school diploma Art.
Just in Somalia, I began writing the early poems and the first diary in 1952/53 continued until 1958/59 when I returned to Italy, these include accounts of journeys to various nations of Africa both the sea voyage, which lasted about one month for our final return from Mogadishu to 'Italy.
diaries and writings continued in Turin, where from 1959 to '63 I attended the university, working - the first full-time in an office, as secretary of the big boss's secretary, then as a substitute teacher with an annual charge - and going with my sisters in the summer holidays hitchhiking trip to Europe (France, Spain, Germany, Denmark, Norway, Sweden, Ireland, G. Britain); experience fabulous, unforgettable, and my brother are traveling on her own going in faraway places, backpackers, stick to lean, working as a cabin boy on a fishing boat up to North Cape.
My future husband but he was fulfilling his obligations to the country, military service, first as assistant to Lecce and then as lieutenant of the Alps in Aosta. We were married in 1962 and was born in January 1964 Luca. The First reached in January of 1965 with the baby of less than a year my husband in Nigeria, Kainji, where he built a dam and where we were working for Italian teachers of the school employees' children.
In 1968, the works are completed, we decided to go to Nicaragua from mine, because I was pregnant and in Italy (Turin) we did not have a job or accommodation. Unfortunately, the baby - Pedrito - was born premature, during a trip to Honduras, in Tegucigalpa, where he died and was buried after 19 days. So went back to Turin and resumed teaching at private schools.
In 1971, after a brief return to Italy to get a new passport - in Africa then you do not accept people from SA because of apartheid in force - as we drove the teachers to Cameroon - were building a railway across the country - where we stayed until '74, when we decided to return to Turin for the death of father Leo, with the intention of permanently stopping also due to the health of Fosca, our daughter, to whom, precisely in Turin was diagnosed with cystic fibrosis, as it was called Cystic Fibrosis. resumed teaching as in state schools, but Leo got a job in the Bank. Luke attended the 1 st and 2 nd part of the Media and Fosca nursery school.
In 1976/77 we were given the opportunity to work in Iran always with the same job. We accepted. We lived in Bandar Abbas on the Persian Gulf, where he built a huge port, until 1980 through the last years of the reign of the Shah, the Iranian revolution and 1 year of Islamic Republic of Iran under Komehini. Fosca In Iran, which, due to a strong attack nearly died of his illness, was taken to Tehran at the American Hospital where he was lucky enough to be treated and saved by a great Iranian doctor, who graduated in France and specialized Cystic Fibrosis in working for 10 years in French Canada .-
When the political situation of Iran fell, it was decided to change everything again. Leo got a job in Honduras: Fosca and I joined him only because Luke will stay in Italy where we had anticipated in 1979, he was evacuated for continuing high school. You will see us at Christmas and during the summer when we will not get us in Italy.
Fosca's health deteriorated, but not because of the life he led: in fact, sport, outdoor life made her
again a new life. There is environmental: the kids make new friends and learn: Luke at Padua University and Fosca - from one crisis to another - ending the Art School and attended two years of Architecture in Venice, we have our work: I teach, now entered the role of Leo in a company, as a seller abroad, holidays in Menorca, in short, a happy life ... if it were not for longer and longer periods of Fosca in which the disease shows its terrible gravity. After a terrible year for her, she decides to go to Baja California, with the approval treating physicians and a suitcase of medicines with you. No insurance wants to take out a policy.
Fosca dies in Mexico City during the trip early to return to Italy because of an exacerbation of his illness. Although I prepared the idea that unfortunately would not last many years, I had, we had hoped until the last.
His illness, however, was at a serious stage, as is clear from our analysis of blood without pre-pregnancy to be close relatives seemed, ironically, that Leo and I fossimomo searched and found with a lantern in order to pass our genes sick with the same severity extreme, which leaves little or no prospects.
impressions that all implementing on my mood, when I speak of Fosca, is accurate and almost identical: all that I always notice this. I naturally speak of her as well, as it were still here with us to share our moods, conversations, laughing trying to belittle the gravity of the situation to tell me not to cry because I would be of no help.
FOSCA NEWS:
Fosca was born in South Africa April 29, 1970 and died in 1991 at age 21, during a vacation in Mexico carried out with the approval of the doctors (the rest of us parents had always followed around the world to stay in our work), due to a sudden worsening of congenital disease: cystic fibrosis. Until the late '60s you knew little or nothing about this disease that was rarely recognized and diagnosed.
Up to ¾ of the twentieth century the disease meant certain death within the first few years of life and was called: the disease of "Salt Kiss" because the sweat glands produce a secretion of these patients with high amount of salts. Today, thanks in very expensive price and daily home care and hospital admissions with repeated annual visits, day hospital analysis, the expected average life is projected for the less serious cases over 30 years, especially if respiratory complications, but also often in other genres, put a strain on all those who are involved directly or indirectly: difficult to make work projects, family of various commitments. The discovery of the gene in the early 80's allowed to conduct "an analysis of DNA of various mutations in the CFTR gene" in some regions are engaged in neonatal mass screening to select subjects suspected disease, later confirmed by sweat test, which allows more timely and effective treatment to prevent disturbance and irreversible damage. Unfortunately, however, has not yet been able to attend on the same gene ill.
Today we also perform tests on the prospective parents ... which was not possible for us, which are suffering from the same form and severity of mutation, which broadcasts to Fosca, as we had searched with a lantern.
are a few excerpts taken from the consultation booklet published by the Foundation for Research on FC, in collaboration with the Association to Combat FC Veneta "An idea, a project, fund a hope "Ospedale Maggiore, Piazzale Stefani, 1 -37 126 VERONA.
"Cystic fibrosis is a" form-morbid congenital - characterized by reduced or absent secretion of exocrine pancreas with consequent disturbances of nutrition and, according the severity of genetic change, problems of varying severity of pulmonary disease, pancreatic insufficiency, bile and other organs, as well as problems of pubertal development and growth - that can be transmitted to a child by both parents through the mutated CFTR gene to which carries a healthy 4.5% of the Italian population. (A sick child in 2500, those recognized as often atypical or milder forms are not recognized) I do not know the percentages of other nations.
The epithelial cells of many organs and internal channels of our bodies, they lack a key protein, called CFTR, which normally presides over some functions of salt transport and defense against infection. This failure involves the production of dense and not very fluid secretions that obstruct ducts and channels, with progressive damage of organs involved: the pancreas atrophies, the intestine becomes occluded, the liver keeps the bile, the bronchi become clogged and infected with progressive lesions of the lungs to cause respiratory failure and heart failure. "
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